The Northern Ireland Rare Disease Partnership (NIRDP) charity recently celebrated its 10th anniversary in the Bishop’s Gate Hotel in Derry.
The celebration event, organised by Sandra Campbell and the North West Rare Disease Support Group, was a hopeful and positive gathering of: rare disease patients and carers; the charity founding members; the NIRDP Charity Board; NIRDP staff team; members of the All-Party Group on Rare Disease – MLAs Mark H Durkan, Maolíosa McHugh and Ciara Ferguson; Rare Disease Academics; and Health Sector colleagues who gathered to hear about the history of NIRDP – something which had started out as a little umbrella organisation and has today become such an important source of help to the 1 in 17 people across Northern Ireland affected by a rare condition or disease.
NIRDP works on a range of projects to advocate, connect, educate and innovate on behalf of the RD community. NIRDP provides a Rare Disease Virtual Support Hub (VSH) supporting those living with and those caring for people with often very challenging and complex medical needs. If you have any queries please contact the Rare Disease Virtual Support Hub on email info@nirdp.org.uk or telephone 0770 447 6929 or 0770 447 6930
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