We’re delighted to announce on NIRDP’s 10th anniversary that an All-Party Group (APG) for Rare Disease has been established at the NI Assembly.
This is all down to you, the NI Rare Disease Community who gave your support to the NIRDP ‘Fair for Rare Campaign’ which resulted in hundreds of letters being sent to all the NI MLA’s urging them to help us set up this important APG.
We would like to introduce the All Party Group Officers:
Chairperson: Mark H Durkan MLA
Vice Chairperson: Maolíosa McHugh MLA
Secretary: Paula Bradshaw MLA
Treasurer: Deborah Erskine MLA
Thanks to the APG Officers and to all the MLAs who have offered their support to this cross party voice at the NI Assembly. We look forward to updating you on the work of the APG in the coming months.