Please don’t struggle alone, reach out!
We offer a virtual support hub to provide information, support and guidance to people living with a rare disease in Northern Ireland
Reach out to Edel Rogan, the Community Activator or Caroline McFerran, the Community Navigator no matter what your query.
Email email@example.com or telephone 0770 447 6929 / 0770 447 6930
With the kind support of The Rank Foundation