Get Involved


Thank you for considering a donation to the Northern Ireland Rare Disease Partnership.

As a small local charity every penny donated will be spent locally here in NI to help the ‘1 in 17’ people who live with a rare disease in Northern Ireland.

At the moment we are in the process of updating our online donations system.  We apologise for the inconvenience but in the meantime donations can still be made by contacting


Want to fundraise for the Northern Ireland Rare Disease Partnership?

Contact Edel on email and we will be happy to support you.

Anything at all goes… but some ideas below to give you inspiration

Why not try?

  • a Bake Sale
  • a Sponsored Anything (walk, climb, silence, …)
  • Choosing us as a Charity of the Year for your work, school, sports association or social group
  • a Raffle
  • Gifts in Lieu (ask for donations to NIRDP instead of receiving Christmas or Birthday presents)

Don’t forget virtual fundraisers can be a great way to raise funds too – such as:

  • a virtual quiz night
  • a virtual pay as you sing karaoke
  • A virtual talent show

Or why not join in our very own Raritea Campaign.

A Raritea is a gathering of people (face to face or virtually) coming together to find out more about rare conditions, over our favourite cuppa and more importantly, we want to encourage everyone to have some fun and raise some funds along the way.

click on  RariTea to find out more

Finally some other simple ways to help.

Amazon Smile – if you shop on Amazon this is a simple and automatic way for you to support your favourite charitable organization every time you shop, at no cost to you. Just add Northern Ireland Rare Disease Partnership as your favourite charity and we will benefit every time you shop.

Give as You Live  – Give as you Live is an award-winning fundraising platform for UK charities.  This scheme helps people raise money through their everyday online and in-store shopping, as well as make direct donations and create fundraising pages.  Again consider adding Northern Ireland Rare Disease Partnership as your chosen charity.


We are actively seeking volunteers to help us with our work in Northern Ireland – so whether you have a few hours a month or even a year to volunteer please email Edel at to express your interest in getting involved and we will be in touch to discuss and make a plan.