Category: Meetups

Foyle & North West Rare Disease Forum Mayors Reception March 2024

Foyle & North West Rare Disease Forum Mayors Reception March 2024

The Northern Ireland Rare Disease Partnership is delighted to announce a special Mayoral reception in honour of Rare Disease Day 2024, taking place on the 27th of March at the Guildhall in Derry/Londonderry. This notable event will convene influential members…
Understanding Rare -Education & Upskilling Programme.

Understanding Rare -Education & Upskilling Programme.

We at the Northern Ireland Rare Disease Partnership (NIRDP) are thrilled to introduce our newly devised education and upskilling programme, "Understanding Rare". This initiative is designed to foster a deeper understanding and empathy towards the unique needs of the 1…
Rare Disease Day 2024

Rare Disease Day 2024

  We’re delighted to announce Rare Disease Day 2024 Annual North and South Conference  Looking to the future for Rare Disease  A conference to bring together people living with rare disease, advocates, care providers, policy makers and industry to learn…
The Virtual Support Hub Team Community Outreach

The Virtual Support Hub Team Community Outreach

The Virtual Support Hub will be getting out and about across the country to say hello! Join us on:  Information and Support Day in Newry- Family Fund Come along to meet our friendly team on Wednesday 11 October in Newry…
Northern Ireland Rare Diseases Action Plan

Northern Ireland Rare Diseases Action Plan

Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…