August Wednesday 4th at 11am via zoom, come along to our informal session – an opportunity to meet others, share, connect and support. Open to all our rare disease community.
To join or for further information email: firstname.lastname@example.org
This session will support self-advocacy, which is the ability to speak-up for yourself and the things that are important to you.
To sign up email: info:nirdp.org.uk
Caring for your Mental Health
Listen to Professor O’Neill share tips and techniques on how to look after your mental health.
Please see all free events below:
The concept of the ‘Living Well with…’ programme is to offer a series of online events, geared specifically at people living with, caring for, working with or friends of someone with a rare condition. All sessions will be led by the NI Rare Disease Virtual Hub Support Team – Edel & Caroline – and will feature a host of guest speakers covering topics such as exercise, advocacy and mental health.
Details below of free events:
3rd March @330pm – T’ai Chi delivered by Disability Sport NI. Come along and try an Introductory session – suitable for all abilities.
12th March @11am –Rare Disease Parents & Carers Information Session,
with Guest speakers from:
‘Contact’ & ‘The Family Fund ‘ Gain information on services available from Contact – a charity which supports disabled children and how to access funding from the Family Fund and meet up with other carers and parents.
26th March @11am – Rare Disease Social Cafe: this is a really informal session to give our rare disease community the chance to get together for a chat over Zoom.
31st March @3.30pm Love to Move – delivered by Disability Sport NI. Come along and try this Love to Move musical movement session, suitable for all abilities.
NOTE: If you would like more information or to sign up, please email email@example.com or call 07704476929
As darkness falls over our capital’s City Hall the invisible becomes visible… bringing colour to the world of rare disease.
We are so pleased that Belfast City Council agreed to support our efforts with their #BelfastLightsAtNight display to raise awareness for #RareDiseaseDay2021