Exciting news the first ever Ulster University Rare Disease Society Event, took place on December 4th 2023. We would like to extend our gratitude to the outstanding members of the UU Rare Disease Society and Sandra Campbell Lecturer and Rare Disease Advocate, as well as all the speakers who made our first-ever event a huge success.

Thank you Dr Shane McKee Clinical Lead, Genetic Medicine for sharing your professional career and research experience, to Anne Marie O’Loan for sharing her experience and knowledge of PKU.

Final speaker this afternoon is Carol Bratton educating us about POTS and EDS.

Patricia Harris Director of Education in a UK Medical School.

Rare Disease Student Society aiming to spread awareness on rare metabolic diseases and raise money for our partnered charity, the Northern Ireland Rare Disease Partnership (NIRDP).

Social Media page below:

Rare Disease Society UU (@uurdsoc) • Instagram photos and videos