During lockdown, George and Saul took part in a project that encouraged young people who were shielding to film their lockdown experience. Through the group Headliners they produced a short film that was funded by the National Lottery Community Fund. To view the headliners project click here: https://www.headliners.org/a-year-inside
Saul and George now both attend the same school and have become close friends as a result of the project.
The Northern Ireland Rare Disease Partnerships says that approximately one person in every 17 is affected by a rare disease.