Children with Rare Conditions in Education

This document addresses the needs of children with rare diseases in education in Northern Ireland. It includes statistics, literature reviews, parent testimonies, and recommendations for teaching and support staff. The aim is to provide a comprehensive overview of the challenges faced by these children and suggest ways to improve their educational experience. If you would like to download or learn more on the collaborative work with Education Authority we are carrying out, please email info@nirdp.org.uk