🌟 Children with rare conditions deserve more than medical care – they deserve emotional strength, hope, and support. 🌟

Behind every statistic is a child facing extraordinary challenges, and a family doing everything to hold them together. Too often, their mental health needs are overlooked. We’re changing that.

By fundraising for the Northern Ireland Rare Disease Partnership – Mental Health Project, we’re creating safe spaces where children and siblings can share their stories, find comfort, and build resilience.

Every donation brings us closer to giving these children the care they need – not just for their bodies, but for their hearts and minds too. 💚

✨ Together, we can make rare seen, heard, and supported. ✨

The Northern Ireland Rare Disease Organisations Forum is a partnership bringing together all rare disease and rare condition organisations operating in Northern Ireland, as well as those interested in contributing to the advancement of rare disease and rare condition knowledge. The forum also includes organisations that support rare disease groups in their work on the ground, such as health services, benefits offices, and advocacy groups. By collaborating with these supporting organisations, the forum strengthens the capacity of rare disease organisations to succeed in their mission.