The Northern Ireland Rare Disease Partnership is delighted to announce a special Mayoral reception in honour of Rare Disease Day 2024, taking place on the 27th of March at the Guildhall in Derry/Londonderry. This notable event will convene influential members…
We at the Northern Ireland Rare Disease Partnership (NIRDP) are thrilled to introduce our newly devised education and upskilling programme, "Understanding Rare". This initiative is designed to foster a deeper understanding and empathy towards the unique needs of the 1…
We’re delighted to announce Rare Disease Day 2024 Annual North and South Conference Looking to the future for Rare Disease A conference to bring together people living with rare disease, advocates, care providers, policy makers and industry to learn…
Rare Conditions Conference in Dungannon, we would like to extend our gratitude to all of the families and professionals who joined us at the conference. Contact - For families with disabled children NI for making this event possible, as…
The Virtual Support Hub will be getting out and about across the country to say hello! Join us on: Information and Support Day in Newry- Family Fund Come along to meet our friendly team on Wednesday 11 October in Newry…
Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…