Category: Events

Understanding Rare -Education & Upskilling Programme.

Understanding Rare -Education & Upskilling Programme.

We at the Northern Ireland Rare Disease Partnership (NIRDP) are thrilled to introduce our newly devised education and upskilling programme, "Understanding Rare". This initiative is designed to foster a deeper understanding and empathy towards the unique needs of the 1…
The Virtual Support Hub Team Community Outreach

The Virtual Support Hub Team Community Outreach

The Virtual Support Hub will be getting out and about across the country to say hello! Join us on:  Information and Support Day in Newry- Family Fund Come along to meet our friendly team on Wednesday 11 October in Newry…
All Party Group for Rare Disease

All Party Group for Rare Disease

We’re delighted to announce on NIRDP’s 10th anniversary that an All-Party Group (APG) for Rare Disease has been established at the NI Assembly. This is all down to you, the NI Rare Disease Community who gave your support to the…
Northern Ireland Rare Diseases Action Plan

Northern Ireland Rare Diseases Action Plan

Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…