See all the photos from this amazing event!!
Meet others from the rare condition family and their carers informally and have a cuppa together. An opportunity to arrange regular meetups for the Armagh area if there is enough interest. Being delivered by locally based NIRDP volunteers ♥
We have recently been awarded funding by the National Lottery through the Big Lottery Fund for a 2 year pilot project, “Stronger Together”, which will work to build capacity within and across the rare disease sector and help to identify development areas for the future.
As a result, we currently have an new opening for a part time, home based member of staff, to cover the Southern, South Eastern and Belfast areas.
The Project Officer will build up knowledge and support in their areas, linking with health & social care and other voluntary organisations and will be first point of contact for people living and working with rare disease.
The project will provide practical advice, signposting, peer support and volunteering opportunities. It will also work to improve networking, partnership engagement and seek to influence relevant policy.
Information about the posts and the application process is available at Community NI
We were one of six delighted community groups across Northern Ireland celebrating a shared award of £1 million from The National Lottery this June, receiving a £112,124 share of this total fund to employ 2 part-time members of staff who will work on an outreach basis.
We have since had a very successful recruitment programme which took place in August with plans for the new project and recruits to begin in November.
The project will provide practical advice, signposting, peer support and volunteering opportunities. It will also work to improve networking, partnership engagement and seek to influence relevant policy.
Fiona McLaughlin, Chair of Northern Ireland Rare Disease Partnership comments “We are absolutely delighted to have this remarkable opportunity to provide the additional support that is so crucial to all our members. This is first for us in Northern Ireland and we are keen to ensure that this funding will make a real difference to families, carers, medical professionals and member charities as well as offering us an important opportunity to raise awareness at government level and beyond”
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The webcast starts at 9am on Thursday 28th February 2013.
Click the PLAY button to start the webcast. Please note that this webcast will also work on most devices – eg iphone / ipad / smartphone / android etc.
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