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All Party Group for Rare Disease

All Party Group for Rare Disease

We’re delighted to announce on NIRDP’s 10th anniversary that an All-Party Group (APG) for Rare Disease has been established at the NI Assembly. This is all down to you, the NI Rare Disease Community who gave your support to the…
Northern Ireland Rare Diseases Action Plan

Northern Ireland Rare Diseases Action Plan

Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…