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Rare Disease Day 2024

Rare Disease Day 2024

  We’re delighted to announce Rare Disease Day 2024 Annual North and South Conference  Looking to the future for Rare Disease  A conference to bring together people living with rare disease, advocates, care providers, policy makers and industry to learn…
Northern Ireland Rare Diseases Action Plan

Northern Ireland Rare Diseases Action Plan

Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…