No matter what kind of zebra you are, you'll be really welcome at the first Rare and Rarely Known conditions meeting in Antrim Library, 31st January, 12 noon - 2.30 pm. Come connect with the community! Event Link - https://fb.me/e/3ZFnrLCW5 Event supported by NI Rare Disease Partnership and Ehlers-Danlos Support UK
Our community support groups, such as Omagh, are here for anyone living with a rare, undiagnosed, underdiagnosed, or very rarely diagnosed condition. These groups provide a safe space to meet, share experiences, or simply have a conversation—even if you’re unsure what’s happening in your own situation. While we do not provide medical advice, we offer […]
Our community support groups, such as Armagh, are here for anyone living with a rare, undiagnosed, underdiagnosed, or very rarely diagnosed condition. These groups provide a safe space to meet, share experiences, or simply have a conversation—even if you’re unsure what’s happening in your own situation. While we do not provide medical advice, we offer […]
Dear Colleagues and Friends, We are delighted to invite you to attend the Northern Ireland Rare Disease Partnership One-Day International Conference – More Than You Can Imagine: Rare Realities. It is a unique opportunity to come together to explore current challenges, share knowledge, and strengthen collaboration within the rare disease community. This Conference […]
