🌟 Children with rare conditions deserve more than medical care – they deserve emotional strength, hope, and support. 🌟

Behind every statistic is a child facing extraordinary challenges, and a family doing everything to hold them together. Too often, their mental health needs are overlooked. We’re changing that.

By fundraising for the Northern Ireland Rare Disease Partnership – Mental Health Project, we’re creating safe spaces where children and siblings can share their stories, find comfort, and build resilience.

Every donation brings us closer to giving these children the care they need – not just for their bodies, but for their hearts and minds too. 💚

✨ Together, we can make rare seen, heard, and supported. ✨

Our community support groups, such as Omagh, are here for anyone living with a rare, undiagnosed, underdiagnosed, or very rarely diagnosed condition. These groups provide a safe space to meet, share experiences, or simply have a conversation—even if you’re unsure what’s happening in your own situation. While we do not provide medical advice, we offer […]

At these small events, you can join someone from our EB Community Support Team and other DEBRA members for tea, coffee, and conversation in a local community space. For our Belfast event this November, we’re excited to be hosting it at the Titanic Hotel, in the heart of Belfast’s Titanic Quarter.