Rare Disease International Conference
Dear Colleagues and Friends,
We are delighted to invite you to attend the Northern Ireland Rare Disease Partnership One-Day International Conference –
More Than You Can Imagine:
Rare Realities.
It is a unique opportunity to come together to explore current challenges, share knowledge, and strengthen collaboration within the rare disease community.
This Conference will bring together Individuals living with rare diseases, patient organisations, families, clinicians, researchers, policymakers, industry partners, health & social care workers, educators, government, and advocates from Northern Ireland and beyond. Through a programme of expert speakers, discussions, and shared experiences, the event will focus on improving understanding, visibility, and outcomes for those affected by rare diseases.
Attendees can expect insightful presentations on key developments in rare disease policy, care pathways, research, and lived experience, as well as opportunities to connect with others. Whether you live with a rare condition yourself or support the community in a professional or voluntary capacity, your voice and presence are vital to this event.
We strongly encourage you to join us for this pivotal day of learning and connection; your participation is key to driving the change we want to see.
Date, location, and complete programme details, along with registration, are available via
We have negotiated a discount rate with the Ebrington Hotel for £185.00 per night, single/double occupancy. If you are booking, please mention the Conference to avail of the special rate.
We look forward to welcoming you.
Kind regards,
The Northern Ireland Rare Disease Partnership Team
