Chat Rare

ChatRare is an online support group for anyone in Northern Ireland (and beyond) who may find it difficult to attend in-person groups—whether you’re joining from your bed, your home, or anywhere else. 

It’s a safe space for people who are: 

• Undiagnosed, rarely diagnosed, or still waiting for answers through the genetic process 

• Feeling lost, isolated, or that something is wrong, but can’t find a clear explanation 

• Already part of another rare disease support group (you’re still very welcome here, too) 

ChatRare is open to everyone: parents, children, carers, people living with a rare condition themselves, and even extended family. From the youngest to the elderly, all are welcome to join. 

If you’re feeling isolated, lonely, or just need to talk to someone who understands, please come along. This mixed group brings together people with different conditions to support one another. 

If you can’t make it to a physical Northern Ireland Rare Disease Partnership (NIRDP) support group, ChatRare is your online alternative—we’ll be here for you. 

It will be held on the 1st of every month, so it’s 1st October & 1st November