The Virtual Support Hub will be getting out and about across the country to say hello! Join us on: Carer Information Fair - Carers Week 2024 Monday June 10th 10.30am (Northern HSC Trust Carer Hub) Carers fair for unpaid family…
Contact are thrilled to be announcing our second Rare Conditions conference this May in Antrim! Following the success of our first Rare Conditions event in January, which bought together professionals, practitioners and familes living with rare conditions, our follow-up event…
We at the Northern Ireland Rare Disease Partnership (NIRDP) are thrilled to introduce our newly devised education and upskilling programme, "Understanding Rare". This initiative is designed to foster a deeper understanding and empathy towards the unique needs of the 1…
The Northern Ireland Rare Disease Partnership is delighted to announce a special Mayoral reception in honour of Rare Disease Day 2024, taking place on the 27th of March at the Guildhall in Derry/Londonderry. This notable event will convene influential members…
We’re delighted to announce Rare Disease Day 2024 Annual North and South Conference Looking to the future for Rare Disease A conference to bring together people living with rare disease, advocates, care providers, policy makers and industry to learn…
Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…
