An official cross-party initiative championed by NIRDP to strengthen legislative action and care outcomes for NI’s rare disease community.
The All‑Party Group on Rare Diseases at Stormont is a cross-party assembly-supported forum established by the Northern Ireland Rare Disease Partnership (NIRDP). It provides an essential platform for MLAs to raise, discuss, and influence policies affecting the ~110,000 individuals (1-in-17) living with rare diseases across Northern Ireland
📣 Call to Action: Join the Rare Disease APG
– We invite all MLA’s of the Northern Ireland Assembly to join the All-Party Group on Rare Diseases and stand in support of the 110,000 people in Northern Ireland living with a rare condition.
Alone we are Rare together we are strong
Join the Rare Disease APG Distribution List!
📩 Sign up today and be part of the Rare Disease community here:https://forms.gle/aXuJfS6MdRPnwCVG7
Voices are stronger than a rare diagnosis
25th June 2025, the Rare Disease All-Party Group.
