Driven by her personal experience of navigating Multiple System Atrophy (MSA) following her husband Michael’s diagnosis in 2004, Rosemary Arbuthnot has become a powerful advocate for the MSA community in Ireland. Witnessing the scarcity of information and support available at the time, Rosemary proactively engaged with the M.S.A. Trust, successfully advocating for the introduction of a Specialist Nurse to Ireland. For many years, she personally organized and hosted these nurses, working tirelessly to establish support groups nationwide and accompanying them on home visits to patients unable to attend meetings. Following Michael’s death in 2010, Rosemary’s dedication remained unwavering. She is currently participating in IPPOSI – Patient Education Programme. Recognizing the increasing number of individuals diagnosed with MSA due to improved neurological understanding, Rosemary has now taken the initiative to co-found a new volunteer-led charity in Ireland, partnering with Prof. Philip Fortier and Mr. Raymond Hynes to further enhance support and resources for those affected by this challenging condition.
