Our community support groups, such as Omagh, are here for anyone living with a rare, undiagnosed, underdiagnosed, or very rarely diagnosed condition. These groups provide a safe space to meet, share experiences, or simply have a conversation—even if you’re unsure what’s happening in your own situation. While we do not provide medical advice, we offer support, guidance, and signposting to help you navigate the challenges of living with a rare condition. What may feel rare to you is often a shared experience in our community, and you are not alone.