Workshop invitation – End of Life Care Patient Passport

The Royal College of GPs NI End of Life Care Group would like to invite you to a workshop in the process of designing the End of Life Care Patient Passport. They have been commissioned to complete this task by the Public Health Agency and, after a long period of consultation and review, need to ensure that such a passport will have the maximum value and use across the region in the many different settings which patients approaching the end of life encounter.

The workshop, which is being supported by the Patient Client Council, will also detail how it is intended that the passport will fit in with other current communication initiatives.

The Passport, as proposed in ”Living Matters, Dying Matters”, aims to provide a road map for patients and families who are facing the challenges and changes of life-limiting illness. It is hoped that the passport will be provided within primary care to all patients when it is judged that they are facing progressive terminal illness and that their care needs are likely to become more complex.

RCGP hope that the passport will:

  • Prepare patients and families for difficulties which they may face in anticipation of those difficulties.
  • Emphasise the multi-disciplinary approach and how to access and make use of care models which the patient may encounter.
  • Provide patients with a coordinated record of contact details for healthcare teams.
  • Help to encourage Advance Care Planning discussions within families and between patients and health care professionals when appropriate.
  • Facilitate the evolution of therapeutic relationships with a range of healthcare workers by giving patients and professionals a discussion agenda to review and collaboratively plan for the evolving stages of illness.
  • Encourage a change in emphasis in end of life care services from a focus on past and present problems, towards an anticipatory focus, with the goals of maximising wellbeing, building resilience, and pre-empting and planning for potential problems.

RCGP hope to consult as widely as possible about the content, layout, and language contained in the document, and also about the logistics of its implementation and use. They are all too aware that without widespread support the potential benefits of such a passport for patients will remain unrealised.

 The workshop will be held on: 26th September 2012 at 9am to 1pm in The Wellington Park Hotel, Malone Road, Belfast.

Please register an interest in attending by contacting: