Children travelling for specialist care

Are your children travelling for specialist care? Belfast Trust and the HSCB want your help with improving the system.

The Belfast Trust Children’s Network is improving the process and information available for families of children and young people that travel for specialist care outside of Northern Ireland. The Trust previously conducted focus groups with parents of children who have travelled for care. The following priorities were identified:

  • More consistent and easy to reach contact for families that travel for care before, during and following their journey
  • Improved information regarding travel, accommodation, financial arrangements and the specialist hospital that their child has been referred to

The Belfast Trust is now ready to appoint a paediatric patient experience officer to be a consistent, easy to reach contact point for families.

The next stage is providing information packs containing the appropriate information.

A draft pack has been produced which has 2 parts:

Part 1: information that will be useful for all families. This is planned to be in an A5 booklet. You can see the booklet here:
Part 2: Hospital specific information that will be tailored to individual families. It may change often so will be added to the booklet in loose leaf form.
An example for Alder Hay Hospital,  is here:

The Children’s Network would appreciate any feedback that you have on the content of these documents: this is your chance to make sure that are as good as they can be, for all those who have to travel for specialist care for their children!

Please contact Kris McKeever, Children’s Network Manager on 028 90 632249 or email with any feedback you have by Friday 23 May 2014.