Collagen – Why Do We Need It?

With support from the Research and Development Division of the Public Health Agency, and in collaboration with the Regional Medical Genetics Service and QUAMS, we are bringing  two external, internationally recognised experts on Connective Tissue disorders and translational genomic medicine, to join with our local experts in a “mini Symposium”, chaired by Professor Patrick Morrison, on connective tissue disorders.

The expert speakers are:

Professor Dianna M. Milewicz, M.D., Ph.D. President George H.W. Bush Chair of Cardiovascular Medicine Director of the Division of Medical Genetics Professor and Vice-Chair of the Department of Internal Medicine The University of Texas Health Science Center at Houston, TX

Professor William Newman, MA FRCP PhD Professor of Translational Genomic Medicine Manchester Centre for Genomic Medicine St Mary’s Hospital Manchester

Dr V McConnell, MD, MRCGP, DRCOG, PGCCE, Clinical Lead, Regional Medical Genetics Service, Belfast Health and Social Care Trust

Dr A Pendleton, FRCP (Ed), FRCP (I), FBASM, Consultant Rheumatologist,  Belfast Health and Social Care Trust

Our aim is to raise awareness of collagen disorders, and provide information on how to understand the diagnosis, and the appropriate treatment and management of these conditions, which from the relatively mild to the life threatening.

The event will provide a focus for patients and carers to improve their knowledge and understanding, and enable them to participate from an informed basis in their care, and in appropriate self-management strategies.

It will add to the knowledge base of clinicians and other health professionals and scientists by providing a world class up to date information and evidence session: and it will enable medical students to learn from internationally renowned experts not normally available in Northern Ireland.

CPD accreditation (2 external clinical CPD Points from the Royal College of Physicians) has been obtained for the event: Registration is required for Certification.

Please Click Here to Register Now!

Lecture Theatre, Medical Biology Centre, Queen’s University Belfast, Lisburn Road, Belfast

18.00 to 21.00, 24 March 2015

PSP support

Progressive Supranuclear Palsy is a rare neurological condition, usually affecting people over 40. It affects movement, balance, vision, speech and swallowing. There is no cure for the condition and treatment takes the form of symptom management, with significant input from community based Allied Health Professionals.

A film made this year about living with the later stages of PSP watch?v=fbeLWp9QHss

Actor Dudley Moore, on his experience watch?v=VVWGutY0xbw

The PSP Association provide a helpline 0300 0110 122 and specialist support to families and clinicians.

There are volunteer led support groups in both NI and the Republic- these give an opportunity for families to share information and support, get a cup of tea and maybe a chance to have a wee weep, amongst people who are/ have been in exactly the same situation.

Dublin support group 6 November  12.00 hours to 14.00 hours in Mater Misericordiae University Hospital, Centre for Nurse Education, Ground Floor, Classroom 4. Nelson Street, Dublin 7. (opposite Eccles Street entrance to Hospital).

Belfast support group 13 November 2-4pm, Marie Curie Hospice, Kensington Road, Belfast, BT5 6NF

Ballymoney support group: February, Robinson Hospital, date to be confirmed

Southern area support group: March, Craigavon/ Dungannon, date and location to be confirmed

For information about NI support groups, please contact Doris Mason 07714 823116, or Fiona McLaughlin 07902 813198

For information about support in the Republic of Ireland, please contact Jim Logue 01 837 5020 or Caroline DooleyMartin 01 8383606