Let’s talk about the plan

NIRDP are pleased to announce that we will be coordinating a series of open meetings across the region for consideration of the draft NI Rare Disease implementation plan.

The meetings are open to all, and are being held in association with senior clinicians, experienced in a range of rare diseases. They are an opportunity to meet others interested in rare disease, and to share experiences and thoughts on the development of services until 2020.

What matters to you?


Date Place Time Senior Clinician Venue
17 Dec 2014 Gransha Londonderry 2pm – 4pm Dr Stewart Board Room, Gransha
6 Jan 2015 Swah, Enniskillen 2pm – 4pm Dr McConnell TBC
7 Jan 2015 Newry TBC TBC TBC
8 Jan 2015 Craigavon Area Hospital 2pm – 4pm Dr McConnell Dr Magee Conference Room, Portadown Care and Treatment Centre
12 Jan 2015 Antrim 2pm to 4pm Dr Stewart Whinstone Suite, Antrim Civic Forum
13 Jan 2015 Belfast 4pm – 7pm Dr Deidre Donnelly, Dr Shane McKee, Dr Tabib Dabir Science Block A, RVH


The Department wants “to ensure that feedback from service users and carers underpins the identification of the commissioning priorities for rare diseases.” These open meetings are one way of being involved in that process.

We will be putting each event up on Eventbrite- so that you can tell us if you are planning to come, and we can get the tea/coffee and biscuit orders right (or anything else you need to make the event work for you!)

We will also be producing a key points guide to the draft Plan- so you can focus more easily on what matters to you…so watch the website…

You can also email ImpPlan@nirdp.org.uk  chat to us on Facebook or twitter and/or respond to the DHSSPS directly at RDIP@dhsspni.gov.uk

We are looking  forward to seeing you!